NORSE REQUIRES URGENT, SPECIALIZED MEDICAL CARE.

The Critical Care EEG Monitoring Research Consortium is comprised of members with this medical expertise and who are affiliated with medical centers that have the comprehensive monitoring technology required. The NORSE Registry is being conducted through this consortium.  

Although this list of epileptologists and medical centers does not represent a complete list of doctors and facilities that can effectively treat NORSE, it is one place to start a search.  

If the doctor managing your loved one’s care wants more information about NORSE:
NORSE and FIRES are uncommon. One source that integrates the views of many experts on NORSE is the recent journal publication: International consensus recommendations for management of New Onset Refractory Status Epilepticus (NORSE) incl. Febrile Infection-Related Epilepsy Syndrome (FIRES): Statements and Supporting Evidence, by Ronny Wickstrom,Olga Taraschenko,Robertino Dilena,Eric T. Payne,Nicola Specchio,Rima Nabbout,Sookyong Koh,Nicolas Gaspard,Lawrence J. Hirsch, The International NORSE Consensus Group, based upon 48 medical experts published in Epilepsia, 23 August 2022 https://doi.org/10.1111/epi.17397